Women and Health Reform
Ensuring the Health Care Needs of Women: 
Resources for Health Exchanges

Data Collection and Reporting Standards

Questions to consider:

 What metrics is your state establishing to evaluate the impact of the Exchange on coverage, affordability and access to health care for women and other subpopulations? Within that context, what data will be collected and what process will there be for analysis that will include appropriate stakeholder input?

 How will your state enforce nondiscrimination provisions of the ACA which prohibit discrimination against women and other subpopulations?

 How will your state monitor and ensure compliance with the new coverage, services and protections afforded women under the ACA? 

Lessons Learned:

Connors Center for Women's Health and Gender Biology, Women and National Health Care Reform

Institute of Medicine, Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement

Institute of Medicine, Women's Health Research: Progress, Pitfalls, and Promise

Kaiser Family Foundation, Performance Measurement Under Health Reform: Proposed Measures for Eligibility and Enrollment Systems and Key Issues and Trade-offs to Consider

Further Reading:

Dorsey R and Graham G, "New HHS Data Standards for Race, Ethnicity, Sex, Primary Language, and Disability Status"

National Academy for State Health Policy, State Policymakers' Guide for Advancing Health Equity through Health Reform Implementation

Robert Wood Johnson Foundation, Can Collecting Data on Patients' Race, Ethnicity and Language Help Reduce Disparities in Care?